Letters: September 2017

Contact The Editor

Remodeling Success
You can’t go wrong with tile [in the bathroom remodel], so that was a great investment. I’m so glad it turned out so well [“Finally, A Roll-In Shower,” July 2017].
Rebecca Edmonson Brown
Via newmobility.com

About Pocket Doors
I tried pocket doors, high quality ones with solid core doors, and eventually took them out. They were good when open for not taking up space, but even when closed, had zero ability to stop sound transmission, which is not what the rest of your family wants on your bathroom door.
Jeff Eddy
Via newmobility.com

Editor: The author, architect Charles Schwab, addresses this issue: “The pocket created can be an echo chamber. I specify the wall board around it to be built with fiber-reinforced Glass-Mat board that is cellulose free and more solid to block sound.”

Omission?
There is a key omission from this discussion relevant to SCI — bladder cancer from long-term use of an indwelling catheter, and/or chronic inflammation from UTI and stones [“Important, But Often Overlooked Cancer Screenings,” ParaMedic, July 2017]. People who have used an indwelling catheter for 10 years or more should discuss screening for bladder cancer with their urologists, e.g., cystoscopy and/or urine cytology.

Bloody urine or pain/urgency that doesn’t resolve with culture-directed antibiotics would be very worrisome, and should prompt an additional clinic visit or urology referral ASAP. See here for technical details: www.nature.com/sc/journal/v51/n7/full/sc201333a.html
Edward Nieshoff
Via newmobility.com

Editor: See NM’s coverage of bladder cancer in our August 2016 issue [“What You Need to Know About Bladder Cancer and SCI”].

Cancer Screenings
My mother, who was an elderly obese woman, had severe paresis from the multiple operations she had for arthritis in her lower back. She was not examined because of the difficulty getting her on a table in her doctor’s office. She was left in her chair during the visits to her doctors. She was finally diagnosed with cancer, but they got it wrong. Instead of stage 3 cancer, it was more likely 1A! She was not properly watched after her operation. Sadly, I feel she was neglected. She was found unresponsive with blood pressure of only 60 systolic. She never recovered. They tried, but she was essentially found dead. … At least her misery was relieved.
Michael Langley
Via newmobility.com

Too Few Know About T4
Great article [Ervin: “First They Came for the Cripples,” July 2017]. Too few people know about T4 and how it was Hitler’s beta version of the Holocaust or that most of the “scientists” involved went unpunished and, in fact, in many cases went on to have successful academic and professional careers. To learn more visit: www.ushmm.org/exhibition/deadly-medicine/overview/. Oh, and I might add, first they came for our Medicaid …
Kevin Siek
Via newmobility.com

Women in Holocaust
Thanks for this article [“First They Came for the Cripples”]. I do cemetery research and am currently working on those who passed through Ravensbruck [Nazi concentration camp for women]. For many it was only a stopping place on the way to one of the euthanasia hospitals. The Nazis had six where they used carbon monoxide. Some of the hospitals were “insane” asylums, so they and the disabled went first.
Robert Peurifoy
Via newmobility.com

What History Omits
One of the interesting things about [Martin] Niemöller’s quote [“First They Came for the Cripples”] is that the way we remember it is actually a bastardization — because he used it often, and often changed the groups of people included, depending on his audience, and he didn’t always leave out disability. Disability is left out in how history remembers the quote because people want it to be a static concrete statement, but it wasn’t. I think that is far more telling than who came first, but rather, who history lets us forget.
Kim Sauder
Via newmobility.com

Single-Payer Cost Not a Problem
Chris Reardon has hit the nail on the head [“On Healthcare,” July 21 blog]: “If everyone joins into the single-payer pool — young and old, healthy and sick — the expensive people like me will be set off by the cheaper, healthier people. And trust me, there is a gargantuan number of healthy people compared to the number of chronically ill people like me. America has one of the largest populations — the cost of single-payer is not a problem.”
Mary Ann Barton
Via newmobility.com

Accessible Stall Competition
My experience is that while I often wait for the accessible stall, rarely is it being used by a parent and child [“Competing with Kids for the Accessible Stall,” July 13 blog]. Most often it’s someone without an apparent disability changing or just enjoying the larger space. And of course, it’s maddening when I have to wait for the one stall I can use, multiple regular stalls sit empty, and the person sashaying out of the accessible stall 15 minutes later eyeballs as 100 percent nondisabled.
Bliss Temple
Via newmobility.com

By | 2017-08-28T14:36:45+00:00 September 1st, 2017|