If you have a question for United Spinal staff, please submit it at unitedspinal.org/ask-us or call 800/962-9629 (choose Option 1). For nonemergency medical questions, try the Craig Hospital Nurse Advice line, 800/247-0257; craighospital.org/resources/nurse-advice-line.
Looking for TED Hose With a Waist Band
I am a T12 para and, due to blood clots behind my left knee after my injury, I wear Covidien TED hose any time I get out of bed. They are the type that come up your thigh to your waistline and snap onto a belt. A year ago or so, my supplier told me Covidien no longer sells them in North America, but supposedly they are still available in Europe. I have friends in Germany and they can’t find any either. I have continued to search for them without any luck.
I tried the lowest-pressure rated thigh-high compression hose but the elastic top cut into my thighs too much, making them very painful.
I use the old-style Kendall hose without the belt by safety-pinning the snap area to the bottom of my T-shirt or shirt. That keeps the hose up and my shirt tail down.
So, I’m reaching out to see if anyone out there knows where I can buy the TED hose with the waist band.
Spinal Cord Injury Resource Center Director Bill Fertig responds:
We searched too and couldn’t find the exact combination you are looking for. When a product like this is discontinued, before you begin using another product — one that may not fit properly and that potentially could even cause additional health problems — we highly recommend that you talk with your doctor, preferably with a physiatrist, a doctor of physical medicine with experience treating individuals living with spinal cord injury. In this case, you may also want to read Care Cure Forums’ conversational threads about compression hose (sci.rutgers.edu/forum/showthread.php?181209-Compression-Socks-and-pressure-marks) and review the PVA Clinical Practice Guides on Deep Vein Thrombosis (pva.org/media/pdf/CPG_thrombo_fnl.pdf).
Senior Correspondent Bob Vogel responds:
Unfortunately it isn’t unusual to get blood clots in the acute stage following a spinal cord injury. Constantly wearing thigh-high TED hose might be overkill, so first I would suggest that you get additional information from a physical medicine and rehab doctor, a hematologist and/or a rheumatologist to see if it’s necessary. It is fairly common for people to come out of rehab with thigh-high compression stockings, but eventually most active people are able to stop wearing them.
In my case, I got a blood clot in my right leg three weeks after my injury. I did six months of blood thinners and six months with thigh-high TED hose. After that, my PM&R doc said I was good to go as long as I didn’t get swelling, or edema, in my legs. I managed another 15 years before I got another blood clot — which came with a broken femur. I went back on blood thinners and started full-time knee-high compression stockings because of lower-leg edema. Working with a rheumatologist, I eventually got off the blood thinners, but I still use compression stockings.
It would be great if I could speak with someone who writes about the types of clothing that women who are wheelchair users wear. I would love to know more about the clothing attributes that they look for when shopping.
Editor Ian Ruder responds:
I don’t think we have anyone on staff who is an expert on clothing design, but we’ve run some good articles that might help. In her article “Fashioned Enabled: Clothing that Works in a Wheelchair,” Kate Matelan writes about the adaptive clothing scene: “Now more than ever, designers are getting in tune with their clientele’s needs, researching what works for people with disabilities, and taking that into consideration when designing and choosing fabrics to hold up to unprecedented washing, pulling and tugging.” Matelan’s article can be found here: newmobility.com/2015/10/adaptive-clothing. And here’s a list of the companies she highlighted:
• ABL Denim, abldenim.com
• Able to Wear, able2wear.co.uk
• Adaptations by Adrian, adaptationsbyadrian.com
• Ag Apparel, agapparel.com
• IZ Adaptive, izadaptive.com
• Janska, janska.com
• Koolway Sports, koolwaysports.com
• MagnaReady, magnaready.com
• Rolli-Moden, rollimoden.de/index.php?language=en
• Rollin’ Wear, rollinwear.com
• Spashionista, spashionista.com
We hope this helps!